Quello che segue è l’intervendo di Linda Tannenbaum (Open Medicine Foundation) durante il Convegno Internazionale sulla ME/CFS, organizzato da Associazione CFS Onlus e da CFS Associazione Italiana, in collaborazione con la Open Medicine Foundation.
I know too well that if I am not able to describe in a Galilean sense the aberrant biological phenomenon that has taken me out of the world, I will have no hope of returning to the world as an active member of society. It is clear to me that there are no shortcuts.
Yet, once in a while, I am surprised to discover a boyish and irrational desire in my mind: to be able to awake one morning finding myself lucid, able to move around in the world with the freedom that too often I took for granted.
Sometimes I just want to awake, drink coffee, get my bag and get on the bike; to live among human beings, like one of them, as it used to be.
In the company of my mind.